Global Leukodystrophy Initiative

NEWS EVENTS. Join our patient Contact Registry to be contacted in the future about clinical research opportunities and updates on the progress of research projects. The word Leukodystrophy comes from the Greek roots leuko. Lack of and troph. Growth. It refers to a group of genetic disorders affecting white matter. The patient Contact Registry allows patients and their families to register with the GLIA and be contacted in the future about clinical research opportunities.

OVERVIEW

The web site theglia.org presently has an average traffic classification of zero (the smaller the more users). We have downloaded zero pages inside the website theglia.org and found twelve websites interfacing with theglia.org. There is one contacts and directions for theglia.org to help you connect with them. The web site theglia.org has been online for six hundred and ten weeks, fourteen days, twenty-one hours, and forty-five minutes.
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12
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1
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1
Online Since
Apr 2013

THEGLIA.ORG TRAFFIC

The web site theglia.org is seeing alternating quantities of traffic for the duration of the year.
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THEGLIA.ORG HISTORY

The web site theglia.org was first recorded on April 10, 2013. It is now six hundred and ten weeks, fourteen days, twenty-one hours, and forty-five minutes young.
REGISTERED
April
2013

AGE

11
YEARS
8
MONTHS
14
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LINKS TO THEGLIA.ORG

Daily clinical lab news - Labmedica.com

Where I can find code? CKD May Occur Before Diabetes Diagnosis. New Heart Attack Test Better Informs Underlying Condition. Omega-3 Levels Predict Death Risk Better Than Serum Cholesterol. Alzheimer Disease CSF Biomarker Used in Clinical Setting. CO-Oximetry External QA Programme Launched. CRP Levels May Indicate Schizophrenia Prognosis. Chromosome Interaction Profiling Reveals Cancer Risk Genes. Circulating Blood Markers Identified for Abnormal Heart Rhythms.

Leukodystrophy Resource and Research Organisation Inc.

18q Syndrome with deficiency of myelin basic protein.

MLD Foundation - The Premiere Family Resource for Metachromatic Leukodystrophy - MLD Research, MLD Cure, Education, and Support

The Premier Family Resource for Metachromatic Leukodystrophy Information and Support. Sign up for MLD Updates. Plymouth Meeting, PA USA 2018. Suffolk, VA USA 2017. Tarrytown, NY USA 2016. Pittsburgh, PA USA 2014. Parsippany, NJ USA 2013. Charlotte NC, USA 2012. Wellington, New Zealand 2011.

MLD Foundation - The Premiere Family Resource for Metachromatic Leukodystrophy - MLD Research, MLD Cure, Education, and Support

The Premier Family Resource for Metachromatic Leukodystrophy Information and Support. Sign up for MLD Updates. Plymouth Meeting, PA USA 2018. Suffolk, VA USA 2017. Tarrytown, NY USA 2016. Pittsburgh, PA USA 2014. Parsippany, NJ USA 2013. Charlotte NC, USA 2012. Wellington, New Zealand 2011.

MLD Foundation Blog - Musings about MLD and rare disease policyMLD Foundation Blog Musings about MLD and rare disease policy

Musings about MLD and rare disease policy. Registration for our 2105 MLD Family Conference. In Newark Delaware is underway and closes in just a couple of weeks. Many of your MLD Family will be there. To meet, share, and socialize with. If you need some help.

WHAT DOES THEGLIA.ORG LOOK LIKE?

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CONTACTS

Stephen Damiani

24 Villiers Street

Elsterwnick, Victoria, 3185

AU

THEGLIA.ORG SERVER

Our crawlers diagnosed that a lone root page on theglia.org took three thousand three hundred and fifty-two milliseconds to download. Our web crawlers could not discover a SSL certificate, so our web crawlers consider this site not secure.
Load time
3.352 sec
SSL
NOT SECURE
IP
49.156.27.111

NAME SERVERS

ns1.ironedgecloudhosting.com
ns2.ironedgecloudhosting.com

SERVER SOFTWARE AND ENCODING

We found that this domain is employing the Apache os.

SITE TITLE

Global Leukodystrophy Initiative

DESCRIPTION

NEWS EVENTS. Join our patient Contact Registry to be contacted in the future about clinical research opportunities and updates on the progress of research projects. The word Leukodystrophy comes from the Greek roots leuko. Lack of and troph. Growth. It refers to a group of genetic disorders affecting white matter. The patient Contact Registry allows patients and their families to register with the GLIA and be contacted in the future about clinical research opportunities.

PARSED CONTENT

The web site has the following in the homepage, "Join our patient Contact Registry to be contacted in the future about clinical research opportunities and updates on the progress of research projects." I saw that the web page also stated " The word Leukodystrophy comes from the Greek roots leuko." They also said " It refers to a group of genetic disorders affecting white matter. The patient Contact Registry allows patients and their families to register with the GLIA and be contacted in the future about clinical research opportunities."

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